Canadian and Australian gastroenterologists, obstetricians, and nurses, along with patient partners, developed and validated the Pregnancy IBD Decision AID (PIDA) the first personalized online decision support program for IBD.

Making decisions regarding family planning can be challenging especially for people living with chronic illnesses, such as IBD. Uncertainty regarding how pregnancy may affect one’s illness and vice versa, or questions about taking medications required to control your disease, can affect a person’s decision making.

In a clinical study of 74 patients, we showed that patients using PIDA developed an improved quality of reproductive decision-making and IBD-in-pregnancy knowledge.

We thank all study participants and clinicians who helped develop and validate PIDA.

Read the published manuscripts.

Grace Wang, Neda Karimi, Laura Willmann, Joseph Pipicella, Joseph Descallar, Katie O’Connor, Luiza Peculis, Yvette Leung, Susan Connor, Vivian Huang, Astrid-Jane Williams. A Novel Decision Aid Improves Quality of Reproductive Decision-Making and Pregnancy Knowledge for Women with Inflammatory Bowel Disease. Dig Dis Sci 2022;67(9):4303-4314. doi: 10.1007/s10620-022-07494-9

Astrid-Jane Williams, Neda Karimi, Radha Chari, Susan Connor, Mary A De Vera, Levinus A Dieleman, Tawnya Hansen, Kathleen Ismond, Rshmi Khurana, Dawn Kingston, Katie O’Connor, Daniel C Sadowski, Flora Fang-Hwa, Eytan Wine, Yvette Leung, Vivian Huang. Shared decision making in pregnancy in inflammatory bowel disease: design of a patient oriented decision aid. BMC Gastroenterol 2021;21(1)?302. doi: 10.1186/s12876-021-01853-y