We aim to share the knowledge gained from clinical research studies, as well as the published clinical care guidelines, in ways that can be easily understood by patients and their families. We also aim to find better ways to educate patients, family, clinicians, and health care providers about the impact of maternal IBD and IBD therapies on maternal and fetal/neonatal outcomes.

INTERESTED or HAVE QUESTIONS?  Wish to participate or volunteer?

If you are interested in participating in any of the studies, please email us at Vivian.Huang@sinaihealth.ca (Toronto) or HuangIBDclinic@sinaihealth.ca   

 

1) Pain Management in Patients with Inflammatory Bowel Disease during Pregnancy

We are looking to understand how Inflammatory Bowel Disease (IBD) affects pregnancy, the things patients may use to manage their symptoms during this time period, and how we might be better able to help patinets manage their symptoms during prengancy.  Steroids and immunosuppresaants are currently used as standard therapies for IBD, but it is our experience that some patients have also reported symptomatic relief from the use of alternative medicine.  The purpose of this study is to assess the use of pain killers, complimentary alternative medicine (homeopathy, herbal remedies, acupuncture, aromatherapy, hypnotherapy, naturopathy) and cannabis in patients with IBD before and during pregnancy.

If you are considering pregnancy, are pregnant, or recently pregnant, and are interested to provide your anonymous insignt into pain management and IBD and pregnancy, please complete the anonymous surveyThis study is being conducted out of Mount Sinai Hospital, Toronto.

 

 

 

2) PIDA (Pregnancy IBD Decision Aid): A decision-aide to help women with IBD and their health care team make informed decisions regarding the management of IBD during pregnancy and peripartum

We brought together a multidisciplinary international committee including members from U of T, UBC, U of A, and Australia, along with patient partners.  Together with patient representatives, multidisciplinary care providers, and knowledge translation experts, we will develop decision aides for patients with IBD to help them make decisions about their IBD management in their journey from preconception, pregnancy, peripartum, and post partum.  We also aim to develop parallel decision tools for clinicians who care for these patients, to help make informed decisions regarding medication and management of the IBD.

If you are interested to provide feedback on the PIDA, please email us at Vivian.Huang@sinaihealth.ca (Toronto).